Three young girls with juvenile Tay-Sachs — Dakota Bihn, Alexis Markowich, and Jashaia Small — are currently receiving umbilical-cord-blood therapy at Duke University Medical Center. The girls are under the care of Dr. Joanne Kurtzberg, who, as the Forward reported last year, has already performed cord-blood therapy on children with Krabbé disease.Read More
Two clinical studies for the treatment of late-onset Tay-Sachs with Zavesca, a drug used to treat Gaucher disease, produced neutral results — “a scientific way of saying that it didn’t work,” said Kim Crawford, director of member services for the National Tay-Sachs & Allied Diseases Association.Read More
Earlier this year, the Lysosomal Storage Disease Research Consortium awarded its first seven grants, which together total more than $200,000, to scientists conducting research into ameliorating the effects of lysosomal-storage diseases on the central nervous system. There are more than 40 of these diseases, called LSDs, including Tay-Sachs, Gaucher disease, mucopolysaccharidosis (MPS) and Niemann-Pick disease.Read More
During the last school year, seniors at the Abraham Joshua Heschel High School, on Manhattan’s Upper West Side, met regularly with their counterparts at Al-Iman, an Islamic day school in Jamaica, Queens.Read More
In late June, the JCC Association of North America and Major League Baseball announced grants to sponsor the after-school Rookie League Pitching Machine Program at 10 JCCs around the country.The league is geared toward players 12 and younger who are making the transition from hitting the ball off a tee to live-pitch baseball.Read More